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Name |
Type of Organization |
Description |
Website address/Notes |
| American
Association on Intellectual and Developmental Disabilities (Formerly known as American Association on Mental Retardation) |
Advocacy |
AAIDD (formerly known as AAMR) promotes global development and dissemination of progressive policies, sound research, effective practices and universal rights for people with intellectual disabilities. | http://www.aamr.org Journals and books Policy Groups Reading Room (offers recent research, articles, materials to read or download for free) |
| Community of Care | Advocacy Networking Best Practices |
Includes information on county specific health and human services in Eastern Oregon | http://www.communityofcare.org The web site is a project of the Eastern Oregon Human Services Consortium, the Oregon Workforce Investment Board and the Center for Human Development, Inc. |
| DD Coalition | Mission:To promote quality service and supports which respectfully further the rights, equality, justice, and inclusion for all Oregonians with developmental disabilities and their families. | Members of the Oregon Network share information, receive publications, can learn about training events and empowerment opportunities, and have the chance to voice opinions on policy issues at the local, state and national levels. | http://www.oregonddcoalition.org/ Become a member of the DD Coalition and stay on top of DD issues statewide. |
| "Disability
Solutions"-- a newsletter for Families and others interested in Down Syndrome and Related Disabilities |
Down Syndrome & Other Developmental Disabilties |
A resource for Families and Others interested in Down Syndrome and Related Disabilities. | http://www.disabilitysolutions.org Subscription to the Disability Solutions publication is free, back issues can be viewed on the web site |
| Epilepsy Foundation of Oregon | Epilepsy Seizures |
EFO's mission is to increase public understanding of epilepsy and help people with seizure disorders improve their quality of life. | http://www.epilepsyfoundation.org/oregon Answerplace, Phone Support with a Parent or Adult Support Mentor, Information & Referral, Employment Plus training program |
| Family Center on Technology and Disability | Fully-searchable database, monthly newsletters, Online conferences, Parent support and Advocacy groups |
A resource designed to support organizations and programs that work with families of children and youth with disabilities. Listing a range of information and services on the subject of assistive technologies. |
http://www.fctd.info Utilities to families of children with disabilites. The 2007 Assistive Technology Resources CD-Rom is here! Click on the site to request your free copy. |
| Family Village | Disabilities |
A project of the University of Wisconsin-Madison, this is a huge web site. | http://www.familyvillage.wisc.edu "Information on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational, education, disability-related media and literature, and much much more!" |
| The National Fragile X Foundation | Fragile X Syndrome | Information for parents, self-advocates, medical and educational professionals. | http://www.fragilex.org Message Board Discussion topics |
| GovBenefits | Government Benefits | A screening tool designed to help you find out about services and benefits that may be able to help you. | http://www.govbenefits.gov |
| KindTree Productions | Autism |
Links and resources of interest for people with autism and their families, based in Eugene, Oregon. | http://www.kindtree.org |
| LD Online | The world's leading website on learning disabilities and ADHD |
Each weekday, they gather interesting news headlines about learning disabilities, ADHD, special education, and other issues. | LD OnLine.org This site is for parents, educators, and children. Links to help sites, LD basics and in depth, plus many features. |
| National Information Center for Children & Youth with Disabilities (NICHCY) | Information about numerous specific disabilities |
Information on specific disabilities with a special focus on children. | http://www.nichcy.org
(A fun page for kids is also on this site.) Information is available in Spanish as well as English. |
| Needy Meds.com | Assistance with buying Prescriptions | A web site that describes itself as "The place to learn about pharmaceutical manufacturer's Drug Assistance Programs." |
|
| Oregon Administrative Rules (OAR) | Rules & Laws | Administrative Rules setting requirements for state agencies and for organizations that are authorized, licensed or certified by the state. | http://arcweb.sos.state.or.us |
| Oregon Helps! | Helps clients see if they "may" qualify for assistance | It can be tough to get the help your family needs. Try this web site to find out if your family can get help from 28 different services. | http://www.oregonhelps.org
|
| Oregon Network of Care | Directory of Services for Seniors and People with Disabilities | Comprehensive web-based directory of services. | http://www.oregon.networkofcare.org Examples of topics covered: adult care facilities, Alzheimer's, end-of-life care, health care, care giving, nutrition, home repair, recreation, transportation and more. |
| Oregon
Parent Training and Information Center (ORPTI) |
Advocacy Education |
Oregon PTI 1745 State Street Salem, OR 97301 Salem Phone 503-581-8156 888-505-2673 Salem Fax 503-391-0429 Special Ed Hotline 888-891-6784 |
http://www.open.org/~orpti Salem office email: orpti@open.org Programs & services throughout Oregon to educate and support parents, families and professionals with focus on special education. Help line, Information & Referral, IEP Partners, Hispanic Outreach, Lending Library Workshops |
| Oregon Rehabilitation Association (ORA) | Rehabilitation Organization | ORA represents and supports non-profit community organizations that provide services for people with disabilities. | http://www.oregonrehabilitation.org The web site includes a calendar of events, Qualified Rehabilitation Facilities, Professional Development and Training Materials. |
| Oregon Revised Statutes (ORS) | Rules & Laws | Oregon laws | http://www.leg.state.or.us/ors/home.html
|
| People First of Oregon | Advocacy Networking |
We want people to know that we are people first and our disabilities come second. | http://www.people1.org
|
| Positive Behavior Support Program, Arizona University | Advocacy Education Research Best Practices |
The Institute for Human Development, Arizona University Center on Disability offers a summary of their Positive Behavior Support program. | http://www.nau.edu/ihd/positive |
| Social Security Administration | Social Security/SSI |
Information about SSDI/SSI; Representative Payee; Medicare; Work Incentives; Request Medicare Replacement Card; Where to Get a Birth Certificate, & more | http://www.ssa.gov |
| TASH (focuses on people with severe disabilities) | Advocacy |
TASH focuses on those who are most at risk for being excluded from the mainstream; are perceived as being most challenging; are least likely to have the tools and opportunities to advocate on their own behalf. | www.tash.org Collaboration, advocacy, education, promoting alternatives to segregated living settings, education and sheltered work environments. |
| The National Center on Physical Activity and Disability | Physical Fitness | NCPAD promotes health benefits from participating in regular physical activity and provides information and resources to enable people with disabilities to become as physically active as they choose to be. | http://www.ncpad.org The web site includes use of short narrated videos illustrating specific exercies, a virtual library focusing on physical fitness and equipment, interactive resources and online media presentations. NCPAD is a collaborative effort of the University of Illinois at Chicago and other organizations and government. |
| The Arc of the United States | Advocacy Education Research Best Practices |
A national organization with state and local chapters for people with developmental disabilities and their families, and people who support them. The Arc advocates, educates, informs its constituents, legislative and policy makers and the general public. | http://www.thearc.org The web site offers excellent publications on line for free downloading, facts about health, education, legislation, quality of life, guardianship, siblings, programs. |
| The DRM Regional Resource Directory | Disability Resource Directory | The Disability Resources Monthly Guide to Resources on the Internet is the grand daddy of disability resource directories for the country. |
http://www.disabilityresources.org You will want to put this site on your personal list of favorites. |
| TRIPS, Inc. | Leisure | Vacations for Travelers with Developmental Disabilities P.O. Box 10885, Eugene, OR 97440 800-686-1013 or 541-686-1013 |
http://www.tripsinc.com
|
| United Cerebral Palsy (UCP) |
Cerebral Palsy | Advocacy Education Services |
|
| Wrights Law (Special Education law and advocacy) | Special Education | Attorneys Pam and Pete Wright, both with expertise in special education law, offer in-depth information for parents about the law, case law and skills for advocates to use. |
http://www.wrightslaw.com Subscribe to a free newsletter. Online publications, such as-- IQ and other testing and measurements. |
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